Blogposts auf Deutsch (unterhalb der englischen Version)
*Bladdergraffiti*
“That image of the bladder-flower on the screen stays with me, a blemish on an otherwise clear surface – like graffiti on a newly painted wall.”
*Cancerversary*
“I’ve been fighting non-invasive bladder cancer since January 2016.”
*Cancer burnout*
„Anxiety is an issue, the fear of recurrence can be triggered by a memory, a smell, a look down the loo to check the pee colour, a painful belly twinge or the sight of the next check up date in the schedule.„
*Scanxiety – stealth as a tiger*
“It likes to come out at night when everything is quiet.”
*Cystoscopy ‘scanxiety’*
“…it’s reassuring to be able to see that everything is alright (or not) but on the other the lead up is so nerve wracking. It’s called ‘scanxiety’ for a reason. “
*Shedding light on cystoscopes*
“I asked about the difference in scopes wanting to shed some light on the subject.”
*Yoga while you wait!*
“For bladder cancer patients doing yoga can help relax and strengthen the pelvic floor which can help with incontinence which may be a side effect of tretament and operations.”
*Bladder healing & CT scanxiety*
“It’s still very inflamed but overall more orange than red.”
*Mental health matters*
“I was reminded of the Johari window psychological model.”
*Positive vibes, an inside job*
“Seeking happiness outside ourselves is like waiting for sunshine in a cave facing north.”
*Gepan – battered bladder support*
“I’m not cured by any means but Gepan has been tremendous support for my battered bladder and has made a significant difference to my quality of life.”
*Operation TURBT (transurethral resection of bladder tumour)*
“Naked beneath the ballbown.”
*Cystoscopy nitty gritty*
“A visual of inside my own bladder – that’s what a cystoscopy gives you.”
*Pearls of wisdom…*
“These wise resources …have helped me understand about making my body stronger and more inhospitable to cancer.”
*Yoga magic*
“The stretches felt like magic-unicorn-fairy-dust coursing through my veins.”
*Recurrence isn’t pretty part 7 – cis cunning as a fox!*
“Carsinoma in situ (cis) is as cunning as a fox – it is a flat high grade aggressive tumour.”
*Keep calm and …*
“I can’t recommend meditation more with or without cancer.”
*Water works*
“Drink more water – was mentioned by every doctor and website.”
*The “Why me?” question..*
“What did I do to get myself into this situation?”
*Mitomycin C aka “purple rain”*
“I disappear down a chemo rabbit hole and hibernate.”
*Bouncing back*
“My energy had bounced back again and I felt so grateful.”
*Creature comfort*
“Cats have a magical sense when to spread some love and Felix was an expert.”
*Chemo days*
“I stood in front of it for a long time. Staring. My bladder full of chemo and my heart longing for tea.”
*The juice glow*
„ Slowly my sickly pallor was replaced by a healthy glow“
*Spice up your anti-cancer diet!*
“use every opportunity to spice up your anti- cancer diet by adding herbs and spices where you can and you‘ll be adding extra protection as well as flavour.”
*Self-love*
“Loving yourself means taking the warning signs your body sends seriously too.”
*Writing a happy list*
„Research has shown that being happy might have a positive effect on our immune system“
*A second opinion – living off Hope*
Was I living in hope to feel my bladder deserved another chance?
*EMDA with Mitomycin C – effects*
“I tried to ignore the headache in the excitement of escaping early and when the hurricane passed I felt washed out, grey and listless with hardly any energy.”
*HIVEC – pure wizardry!*
“Hyperthermia increases the effectivity of the chemo against cancer cells without increasing the toxicity for the patient. Pure wizardry!”
*HIVEC with Mitomycin C – deep, deep purple*
“The one constant with the different administrations of Mitomycin is it’s a deep, deep purple colour. Rather lovely actually.”
*Helping hands*
“I’ve seen and had so many helping hands it gladdens my heart mightily.”
*Being present*
” When I don’t stay present and I start to feel afraid then the fear chatter starts.”
*Day-of-the-dead-tired*
“The tiredness from chemo goes deep, into my bones and drains all the colour away from my face leaving me looking like I’ve put “day of the dead” make up on.”
*Bladder balance*
” Some days bladder balance is easier to hold than others.”
*Plant-based and happy*
” It’s about two years since I’ve been completely plant-based and I’ve never felt happier in my own skin.”
*Go bananas!*
“It’s an Aladdin’s cave of amazing fruit and veggies, I literally take a shopping basket and go bananas.”
*Recurrence isn’t pretty – part 1*
“I felt like an animal caught in an unforeseen trap and hung up to await an uncertain fate.”
*Recurrence isn’t pretty – part 2*
„I felt skinned-rabbit-raw and vulnerable,…“
*Recurrence isn’t pretty – part 3*
„..felt like the perfect day to start the blog that had been in my head for a while.“
*Recurrence isn’t pretty part 4 – worrier or warrior?*
“The warrior part of me embraces this concept and enjoys the synchronicity of doing warrior poses whilst staying present with the feelings and emotions.”
*Recurrence isn’t pretty part 5 – inner guru*
“…that inner Guru who is always there and ever wise but easy to miss in the tumult of life ”
*Recurrence isn’t pretty part 6 – it’s a zebra!*
“when you hear hoofbeats think horses not zebras’ ……assess symptoms and think the most common cause first ie horses without jumping to the rarer or more serious cause ie zebras.”
*Let’s Dance!*
“What a relief. Let’s dance!”
*’Talking with Cancer’ and other podcasts*
“Sadly Katie is no longer with us.”
*Inner balance*
“Nowadays experience and techniques to reduce stress, increase well-being and restore inner balance is more important than ever.”
*Recurrence isn’t pretty part 8 – itchy immunotherapy*
The itching has become worse, so “I take antihistamine too. There’s no rash or broken skin but when the antihistamine level sinks the itching is ‘tear-your-clothes-off-unbearable’.””
*Padcev & Keytruda Knights in shining armour?*
“I’m optimistic Padcev and Keytruda are finally my knights in shining armour!”
*Check-up angst*
„ Are they even butterflies? And why early?“
*Happy as a robin*
“I could hear my heart singing with happiness like a robin.”
*Stress busting*
“I’d put stress quite high on the list of causes of my bladder cancer and its return..”
*10 years of bladder cancer*
“In ten years I’ve certainly learned who and what is important in my life.”
*#50 Mitomycin*
“It amazes me because this poisonous and toxic liquid stays in my bladder for 90 minutes and it’s been in there 50 times!”
*BCG 1&2 – drink water, water and more water*
“Drink as much fluid as possible, water, herbal tea and juice to literally flush everything out.”
*BCG 3&4 – strengthen the immune system*
“I’m not going to join my Wim Hoff trained yoga teacher in his outdoor ice bath any day soon but I do appreciate the benefits.”
*BCG treatment – organic gardening in the bladder*
“…organic gardening because it encourages a healthy ecosystem in the bladder. Chemotherapy like Mitomycin is more like weedkiller in its approach.”
*BCG 5&6 – rest and digest*
“Shavasana allows the parasympathetic nervous system (otherwise known as rest and digest) to kick in.”
*BCG 7, 8 & 9 – Bladder love*
“I try to love my bladder despite what it throws at me.”
*Yoga practice*
“Yoga practice is a daily bit of heaven that I’m very grateful for. Namaste 🙏 “
*Chemo etiquette*
“That ingrained fear of saying the wrong thing:”
*Pee problems part 1*
” Incontinence is another topic shrouded in shame and not talked about.”
*Pee problems part 2*
“Sometimes I’ve cut the queue and visited the gents and I’m often not the only one.”
*Omens and obstacles*
“Kiki the cat had peed in the bathtub and the pee was bloody!”
*Light at the end of the tunnel???*
.my new focus isn’t a light at the end of the tunnel, it’s a bright light here in the present.”
*World Cancer Day 2026 – united by unique*
World Cancer day on 4 February 2026 – the theme is “United by unique”
*Weeping eyes and happy heart – 4 months of Padcev and Keytruda*
“So although my eyes are weeping my heart is happy knowing the therapy is working its magic.”
